HomeWelcome to our website
This website exists to provide support and information for anyone affected by cancer in a teenager or young adult. It contains personal stories written by parents who have accompanied their adolescent/young adult son or daughter along the roller coaster of the cancer journey. Some of the youngsters survived their illness, others did not. New stories can be added and in this way we hope to reduce the isolation many parents say they feel when faced with this most challenging situation.
The site also includes extracts from two of four books based on research conducted by Dr Anne Grinyer of Lancaster University and funded by the George Easton Memorial Trust. The first book Cancer in Young Adults: Through Parents’ Eyes (2002) is based on first hand accounts from parents about their experiences of supporting a young adult with cancer. The second book Young People Living with Cancer (2007) discusses what teenage and young adult cancer patients say are of most concern to them about their illness and treatment. Both these books are published by Open University Press. Click on Publications to find summaries of the main issues from each book and to see a list of journal articles.
A third book by Dr Anne Grinyer, Life after Cancer in Adolescence and Young Adulthood: The experience of survivorship was published by Routledge in April 2009, and the Trust has recently funded a fourth study into life stage issues affecting palliative care decisions for children, teenagers and young adults which was published in March 2012 by Wiley Blackwell and entitled Palliative and End of Life Care for Children and Young People.
The George Easton Memorial Trust funds this research in memory of George who died aged 23 from osteosarcoma which was diagnosed when he was a 19 year old student. During his illness George’s parents, Geoff and Helen discovered that there was surprisingly little information available about the immense impact of a cancer diagnosis in a young adult or about the implications of this transitional life stage. Since the Trust was set up in 2000 there has been a huge increase in awareness and facilities for this age group and Trustees are pleased that the work of the Trust and Anne Grinyer’s research has helped in this process.
